May 13th evening update

Good evening everyone,

There is a lot to cover tonight but not sure if I am going to be able to get all the information out correctly due to sheer exhaustion so bare with us as we are on day 5 of team little sleep.

Today was a great day, started the morning off with a text from Brandi that she was discharged and waiting for the papers and medications. (First win of the day) next got to see how beautiful Seattle children’s is and how awesome of a place it is. Went to grab some breakfast and then got a phone call that walkers team of providers was meeting up and wanted me to be there so now it was walking very fast back to the nicu to meet all of them, and holy cow they hit the ground running. Walker had another very busy day, got a couple X-rays to look at his lungs, got some medicine through the picc line he got early this morning. His sodium and electrolytes were still down a little today so they are able to get him the things he needs, got an abdominal ultrasound to take a look at his kidneys and then spoke with the kidney specialist and like what they are seeing! (Another win) and the little guy started going to the bathroom he is still a little low but he is getting some of the fluids out finally. He has needed a couple rounds of calcium and magnesium as well. Then his mom got here and got to see his new room! Shortly after that we were able to hold him for the first time today and let me tell you that was a boost for both of us! We cried, we smiled, we bonded, and if I do say so myself, he loved every single second of it.

after that there was multiple different departments that wanted to meet Walker and sit down with us and explain to us what is going on now and what they would like to see happen this week, it was good. All in all today we had a win for today, that’s all we can ask for.

We do apologize if we don’t get back to people right now but we are focused on Walker and focused on what we need right now to make sure he is getting the best possible.

Tonight the room is very quiet very early for the first time in 5 days. We are gonna try and sleep and get some rest.

Good night warriors

Love you all

Walker, Brandi, and Tyler

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