5/27 update

Good evening all!

Here is today’s update! I was not there today went back to work but was told informed all day and kept track of what was going on. Morning rounds information;

-Lost 120grams 

-Stable on 4liters high Flo 

-They think weight loss is from urine output and fluid shifts 

-increasing fluids with his food. Went from 64 ml up to 69ml

-They talked about putting an IV in tomorrow if the increase in food doesn’t help. 

-nasal drops stop tomorrow, with this if he maintains what he is doing with his breathing then we get to move to a lower level on the high Flo.

They started fortifying his food more today with some more supplements and giving him more calories.

When Brandi got to hold him today someone decided that they were gonna show her, his new trick and that was how to smile! I got sent videos of it and couldn’t help but smile myself.

Walker did have physical therapy today and she rolled him on his side, his belly, and his other side and the little guy did everything he needed to do for her to say her my your doing good! Brandi did say he was super gassy while on his belly.

That is what we have for tonight! Thank you again everyone who has followed his journey, has supported us. We can’t be doing this without you!

Walker, Brandi, Tyler

Comments

  1. Jeanette PetosaMay 27, 2025 at 8:09 PM

    Walker looks so tiny in his mommy’s arms in the second picture! What a precious little baby

    ReplyDelete

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