5/19 evening post! Some important links in here as well

Good evening!

Today was a very busy day! Walker was a very popular guy today. He met with ENT, endocrinologist, orthopedic, cranial facial, podiatry.

We did get his ct scan results and cranial facial came in and showed everything. They explained a lot, showed us the scans and explained every detail and was great. They did explain to us that he will need a surgery around 1 year old for some stuff in his skull which we knew about and was better news than we thought. And he reassured us that this is some fixable things. When orthopedic they told us that the things they are looking at will not be on the radar till his is at least a year old maybe older so that was good news. Endocrinologist came in and said they want to see him in a couple weeks. And then ENT we had them come in twice the first one came in said that they saw that one of his nostrils is open at 3.5 mm which is the size of a aux cord now and the right side was inconclusive. So they weren’t exactly sure what to do he got a phone call and had to get to something else, second one came in and said he isn’t sure if we should continue with extubation just yet and want him to have a few good days of him breathing much without much help from the ventilator. So we are in a spot where we will see what tomorrow brings with his breathing tube to come out. Ophthalmologist did come in and did some tests as well and was happy to see he was responsive to light and was a little early for them to make decisive decisions on what they can say about his vision. She did say with him responsive to light that things are looking bright for him! (Pun intended)

Brandi did get about 1.5 hours of skin to skin during all of this. Towards the end of skin to skin Walker decided that he wanted to go back into SVT (super fast heart rate) we were able to get him back out of it after about two minutes. We are still uncertain on what’s causing this and we are probably going to hear from cardiology tomorrow.

All in all today was a good day we got a lot of great news about the little warrior, there was a couple things that weren’t so great but today was a big win!

one of our close family friends that is great with this stuff did start a gofundme for the little warrior. It is tough for us to ask for help as we are always wanting to help others. I will post the link here and do appreciate everyone that donates and if you can’t we totally understand and just ask if you can share it as Walker is a warrior and hope he can be role model of how strong kids are! He is a fighter and makes me feel so proud of how strong he is! He is one of my hero’s now!

Thank you everyone hope you have a great night!

Walker, Brandi, Tyler

https://www.gofundme.com/f/walker-the-warriors-big-little-fight?modal=donations&tab=all

Comments

  1. Jeanette PetosaMay 20, 2025 at 6:53 AM

    How very precious it is that you see your son in the light of Hope and progresses. YES, WALKER IS A BLESSING 🥰

    ReplyDelete

Post a Comment

Popular posts from this blog

Very early May 13th

Image
Good evening/Good morning! Walker first full day in this world was a day of tests. Started the morning with an attempt at a pic line IV for him have better access for meditations, and things that will help with his sugars, electrolytes, and salts. Also with the IV he has right now we aren’t able to hold him with the placement of it. It is not in very far. That wasn’t successful due to how windy his vessels are. After that he got an xray to check on how his lungs and they are clearing up! Fluids are starting to leave and let him use his lungs. After that Brandi came down and checked on him and got to spend some time with him she has been absolutely amazing with getting him the nutrients that he needs. We let the doctors come in and do an echocardiogram on his heart and do some imaging. At this time his blood sugars had started to level out yesterday very low and this morning very high so that was a win! we all went upstairs and let the doctors check on Brandi and make sure she is still ...
Read more

Good morning! 5/13 morning update

Good morning everyone! Yes we have all slept. We will start with that. I wanted to thank everyone that are enjoying these updates. This is so much easier for us to post here and get the information to everyone rather than individual texts to everyone. I have made comments open as well and we are reading them on here. Thank everyone for your support. Recap: Last night after we got here to children’s they started right in giving him the best care and wanted to get a picc line established. His first two hours here we were successful on that getting put it! (Huge win!). After that it got pretty quiet in the room with him, Brandi was updated and FaceTimed with him and we all went to sleep. He did have a few people check on him throughout the night but was really quiet, happy he got to rest as well! while we were asleep at children’s Brandi got the news that they are starting her discharge today, started around 5 am now almost 10 and close to being out of there (we do know that it takes quit...
Read more

5/11 morning update. Happy Mother’s Day!

Image
Good morning everyone! First I want to say happy Mother’s Day to all the moms out there. Want to give a big shout out to my mother Janet for being the rockstar that she is! She has been doing everything she can help us with everything. Second my wife, Brandi you have shown you are ready for motherhood and you are one of the strongest women I have ever met, I am beyond proud and privileged that you are the mother to Walker. You are killing it! Now the update you all came here to read, it has been an interesting night! Last night the nurses came in to do the last monitoring session of the day for Walker and the little guys heart rate has gone down! Went down to much! Was at 90-98 so he had everyone pretty freaked out and had every doctor from the OB on full alert, we gave him some time watching him on the ultrasound and his heart rate came back up to normal rhythm. With this the little turkey caused another room changed at 12:30 am. We are now back down stairs on the labor&delivery l...
Read more