5/17 full day update!

Good evening everyone!

I needed a break this morning from my phone. Needed a morning of recharging and getting ready for a day with our little family. So thought we could do a full day update tonight.

We got our morning phone call from the doctors and we got the results from the MRI and nothing has changed from what we already know which was amazing, his O2 is still down in the low 20s last night and all day today. Fluids are getting bumped some more which is good. They also increased his food intake from 15ml to 18ml so they know he is a growing boy!

When we arrived the nurses over night wanted to spice up his room some more and made his room white board all different colors and wrote his name so beautifully that we all had that “awe” moment that she took the time to do that. Neurology came by to tell us a more in depth explanation of the mri and they said nothing has changed. Then we got to do some snuggle time! First Glamma Janet got to hold him for a hour, with everything she has done for us she deserved it. Walker did want to let her know that he loved her by having a very noisy bowel movement which was so funny! Then Brandi wanted some time of holding him and they were able to place him on her chest this was the first time they have been able to do chest to chest, skin to skin. Brandi was in heaven and didn’t want to give him up. she did give him up as they had to change his Iv set up.

With the new IV set up they removed his UVC (umbilical cord iv set up from day 1) and were able to get rid of a few more cords so it is not so overwhelming to hold him. That is a huge win for him! His doctor he has had all week is off rotation after today and came by and wanted to say he is in good hands with the doctors coming in on rotation. He did tell us Walker is still trending on the side of his air tube coming out this next week. When he arrived his pip number was at 20 (pip is the number that show how much it needs to help the lungs inflate and deflate) he is bouncing between a 8 or 7 and needs to be at a 5 for them to make that decision. So we still have a little to go but he is getting there. With him getting his air tube out we will need to have a little repair surgery on his nasal channels before they would do it but the ENT is on standby and ready to do that when the decision is made. This evening we saw him get fussy again and was trying to find a way to help him not get so worked up and found that he loves pacifiers!! That was the one thing that helped him tremendously! So we added that to the list of things he loves! We did come home again tonight to recharge some more and get good nights rest. When staying in the room with him we usually get about 2 hours of sleep then up for a hour then back asleep for 2. So we are getting much more rest here at home.

Brandi has been an absolute beast when it comes to getting nutrients for Walker and is healing great! She is moving around a little better today!

Today was another great day even though it was pretty gloomy with the weather. There is something about being in his room that puts Brandi and I in a relaxed state and have a hard time staying awake. I did take a nap while they were changing his IV set up and the nurses don’t know how I was sleeping.

Thank you everyone, love you all. Have a great night!

Walker, Brandi, Tyler, Janet aka Glamma

Comments

Post a Comment

Popular posts from this blog

Very early May 13th

Image
Good evening/Good morning! Walker first full day in this world was a day of tests. Started the morning with an attempt at a pic line IV for him have better access for meditations, and things that will help with his sugars, electrolytes, and salts. Also with the IV he has right now we aren’t able to hold him with the placement of it. It is not in very far. That wasn’t successful due to how windy his vessels are. After that he got an xray to check on how his lungs and they are clearing up! Fluids are starting to leave and let him use his lungs. After that Brandi came down and checked on him and got to spend some time with him she has been absolutely amazing with getting him the nutrients that he needs. We let the doctors come in and do an echocardiogram on his heart and do some imaging. At this time his blood sugars had started to level out yesterday very low and this morning very high so that was a win! we all went upstairs and let the doctors check on Brandi and make sure she is still ...
Read more

Good morning! 5/13 morning update

Good morning everyone! Yes we have all slept. We will start with that. I wanted to thank everyone that are enjoying these updates. This is so much easier for us to post here and get the information to everyone rather than individual texts to everyone. I have made comments open as well and we are reading them on here. Thank everyone for your support. Recap: Last night after we got here to children’s they started right in giving him the best care and wanted to get a picc line established. His first two hours here we were successful on that getting put it! (Huge win!). After that it got pretty quiet in the room with him, Brandi was updated and FaceTimed with him and we all went to sleep. He did have a few people check on him throughout the night but was really quiet, happy he got to rest as well! while we were asleep at children’s Brandi got the news that they are starting her discharge today, started around 5 am now almost 10 and close to being out of there (we do know that it takes quit...
Read more

5/11 morning update. Happy Mother’s Day!

Image
Good morning everyone! First I want to say happy Mother’s Day to all the moms out there. Want to give a big shout out to my mother Janet for being the rockstar that she is! She has been doing everything she can help us with everything. Second my wife, Brandi you have shown you are ready for motherhood and you are one of the strongest women I have ever met, I am beyond proud and privileged that you are the mother to Walker. You are killing it! Now the update you all came here to read, it has been an interesting night! Last night the nurses came in to do the last monitoring session of the day for Walker and the little guys heart rate has gone down! Went down to much! Was at 90-98 so he had everyone pretty freaked out and had every doctor from the OB on full alert, we gave him some time watching him on the ultrasound and his heart rate came back up to normal rhythm. With this the little turkey caused another room changed at 12:30 am. We are now back down stairs on the labor&delivery l...
Read more