6/9 update

Hello everyone,

today’s update morning rounds

  1. weight at 3225 grams down 75 from yesterday.
  2. no SVT
  3. started no feeds at midnight last night and some of his bloodwork came back high. Adjusted his fluids from 120 to 140 this morning
  4. he is a tricky one to get an iv in and the only place they could get a good one was in his head. When we got here was very scary looking but he is doing well with it.
  5. surgery scheduled for 11 am

We got here before rounds and the only thing on the agenda today was to get his g tube in. So we snuggled him as much as we could before he had to go back to surgery. Surgery was a little behind schedule and didn’t take him back till 1 pm. At that time Brandi, Glamma, and I went got lunch and ate on the rooftop garden, this spot is awesome at the hospital let’s us get some fresh air. Be out in the sun and gives us a spot to eat lunch as well. We got done with lunch and he still wasn’t out so we just waited in the room and his nurse Katie came in and said he is done! He’s on his way back to the room. He got here and he was not happy at all! Took a few minutes to get him to calm down but when he heard us and we got to touch him he was back to the sweet boy we all love. They said no SVT during the surgery, he did great under anesthesia and got him all figured out for future surgeries

So now he has a g tube. It goes straight for his belly on the outside right into his stomach. We can start meds in it at 9 pm but no food for him till tomorrow. So he will have the iv in his head till tomorrow and they did put his feed tube back into his mouth for now to get him his SVT meds.

We are all thankful for how well this went and so happy he did so good! Brandi and I are going to stay at the hospital tonight with him to sooth him and be here as a family with him having a big thing happen to him. We love you all and thank you so much for your prayers and thoughts. He is truly a warrior!

Walker, Brandi, Glamma Janet, Tyler

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