6/7 update

Evening!

Here is the update for today,

  1. gained another 50 grams
  2. no changes to his o2 with the surgery coming don’t want to change anything
  3. no SVT
  4. plan for today get his butt feeling better. He has had really bad diaper rash for a week that has now turned into a wound. They are adding stuff into his diaper to help.

Today he got to meet a couple of his aunts, we got to hold him and while holding him he decided to spit out his feeding tube again. With this we are now convinced he want to get the g tube surgery.

We left at noon to go to Brandi’s uncle funeral and we have not heard anything and he has just been having a calm day before his surgery. We did get told that they might change his surgery as it’s not high priority but they want to get it done. Hopefully he doesn’t get bumped.

This is what we have for an update, we are gonna be there more tomorrow and will have a better update. Love you all

Walker, Brandi, Tyler

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