Full day update 5/22

Hello everyone!

we are doing one update today, we slept in today and got the call from rounds that he was still doing amazing! They upped his feeds again to 47 ml today. They are weening off his pn and lipids. By tomorrow they won’t have to give him many more fluids and talking about taking his pic line out. We were a little concerned and asked if he can keep that in for a couple days to make sure his levels are still good, with how hard it was to get a line in him I think it’s a safer way to do it. The doctors agreed as well!

When we got here we were welcomed by one of his favorite nurses Katie. She said he is doing great! We held him for about 3 hours total and papa curt came down to visit him again. By this time respiratory came back in and said has he not been making bubbles with the cpap for long? We went he’s breathing really well through his nose and had his mouth open. So he went and talked to the team and guess what? He graduated out of the cpap and now has a high flow nose tube! He is doing absolutely fantastic on it at setting 6 at 21% which is absolutely incredible!

He is truly a warrior and fighting so well! Katie is really impressed and happy! The doctor that delivered him at UW started his rotation today and came by to see us and was very happy to see him off the vent and doing so well!

It’s been another wonderful day here and he is kicking butt! I will make sure to include some pictures thank you everyone! It’s another win for Walker day!

Love

Walker the Warrior, Brandi, Tyler

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