5/21 morning update

Good morning all you warriors!

Today is a big day for Walker, Brandi and I had a heard time sleeping last night due to just sheer excitement for him. We made it the hospital 5 minutes after rounds but did get the schedule for the day.

  1. fluids look good potassium is up so we are weening off that. Calcium is down so replacing the potassium for calcium. Feeds are gonna stay the same as he has a has a lot of other things going on today.
  2. He is getting an echo to look at his little heart again and make sure it is still looking good. Upped his meds for his heart and hopefully reduce the chances of SVT.
  3. At about 11-12 today they will do the extubation and hopefully he can breathe on his own. They have done drops in his nose to help getting rid of any secretions in there for when the do take his breathing tube out.
  4. hopefully get to hold him without the tube in and give him some more lovings.

We have not heard of any specialists stopping by today except ENT to do the extubation and genetics to give us some more information about apert syndrome.

thats what I have for today’s agenda and will post some pictures later in a post without his tube in.

have a great Wednesday everyone!

Walker, Brandi, Tyler

Comments

  1. LindaStefaniniMay 21, 2025 at 12:51 PM

    Soooooo excited for him. Fingers, toes, eyes crossed and prayers!

    ReplyDelete

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